Concerns About Health!

This week has been seven days of hell where my health is concerned, so much so, I am thinking of taking matters into my own hands. I have so many conditions to contend with at the moment, that I literally don't know what ailment is causing which pain. It has become very hard functioning on a daily basis, without experiencing some sort of discomfort. I don't know how many times I have mentioned it to my GP, only to be fobbed off with a generalised answer, that is designed to make me feel better... WELL, I DON'T FEEL GOOD, I DON'T FEEL GOOD AT ALL!

After a series of Xrays on my back and hips, I had an appointment with Rheumatology this week, to discuss the results. As usual, I was expecting the worst and had mixed feelings about hearing from the consultant. As it happens, there was good and bad news, and it certainly wasn't as terrible as I thought it would be.

Luckily, I have been told that I don't have rheumatoid arthritis, which would have been the worst outcome of all. The signs were there, but the blood tests and xrays came back negative. The bad news was really as I expected. I have substantial damage to the discs and joints in my lower back, which have been causing me a lot of pain. The Doctor explained that ultimately I may have to have an operation, but as long as I can live with the aching, she recommended I do nothing yet. Also, I would be referred back to physiotherapy, which could now be more tailored to my own personal needs. As per usual, she suggested I lose weight, which is easier said than done. Despite all the walking I do on a daily basis, the pounds just seem to pile on.

Speaking to her about  my difficulty with weight loss and other chronic symptoms I have been experiencing, she hinted there may be a problem with my thyroid. A chat with my GP and more tests and referrals, could help me discover why I am feeling the way I am.  I'm sure my GP must think I am a hypochondriac at times, but after three years, she is used to my ongoing complaints. To be honest, looking at my constant push for answers, I have discovered many ailments, I never knew I had. You do have to be as vocal as you can, especially during a pandemic, because surgeries across the country are not working as they should and many people are being left in pain, like me. It is important for me to find out what is going on, so I can finally move on with my life.

On Thursday, whilst talking to Darrell on the phone, I was interrupted by a phone call from QA Hospital, from the surgical unit of the upper GI department. They had a date for my cholecystectomy operation to remove my gallbladder, finally, after a year and three months of waiting. I was informed the date would be 17 July and I would need to make arrangements to attend on that day. I am also required to self-isolate for three days prior to the operation and take a PCR COVID-19 test a few days before. Despite the logistical nightmare, of having a procedure during a pandemic, I was just relieved I would finally have my gallbladder removed and could hopefully start living a normal life again. Only time will tell whether this will be enough to stop the pain I experience on a daily basis, or if I will have to undergo more treatment in the future.

Today, whilst at work, I was contacted by QA Hospital once again to change the appointment date to the following week, due to no radiologist being available on that day. On the same weekend my Aunt is throwing her first party for close family and friends, I will be confined to a room upstairs. This is rather annoying if I am honest, but I am so desperate to have this operation, I will just have to do what is necessary. This is the only date available, and I just can't pick and chose right now.

On top of the conditions I suffer with, Diverticular Disease, GERD, a large Hiatal Hernia, gallbladder disease and narrowing of the spine, I also have IBS symptoms on a daily basis. As you would expect, my IBS is out of control at the moment. I always refer to IBS as 'my IBS' because all of us who suffer with it, have our own unique symptoms. This is an individual disease, that affects each of us differently. My symptoms are ongoing, every day, but thankfully some days are better than others.

Since my first severe symptoms more than three years ago, with careful planning, eating a relatively low FODMAP diet and medication, I have managed to control the worst aspects of IBS. I do, however, suffer more frequently now than I used to, just in a milder form. I have been told that the chronic conditions I experience, are at least in part responsible for the abdominal pain I have, but I just can't be sure by how much. IBS controls your whole life, sucks the lifeblood out of you and consumes every waking hour. Stomach, back, hip and pelvic pain is common, as well as a change in bowel habits, nausea, dizziness and depression. I am frequently reminded how I will have to live with this for the rest of my life, and I am constantly searching for solutions to help me cope with the anxiety and distress this causes.

I am hoping that after my operation, my IBS symptoms will subside, but I am told that may not happen, and there is a chance I could be left in a worse state than I am now. Having a cholecystectomy is no guarantee of normality, in fact it may well just be the beginning of a journey to repair the damage done to my body over many years. I have learned to live well again, eating healthy, no longer smoking or drinking and working hard to survive. I have rebuilt my life and become a much better person, but the years of neglect have taken their toll and I will most probably live with persistent pain for the rest of my days. Managing the challenging aspects of illness, and mitigating the worst characteristics of these complaints, should help me regain some form of control. As a wise man once told me, 'Don't let it control you, control it!' Removing the constraints I have lived under for so long, is my overriding priority now, beating back the spectre of illness and overcoming my concerns, offers a path of hope through a sea of pain!

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